Job Description

Work as part of the paediatric palliative care network to develop safe care pathways between Health Board services and Ty Hafan. Work with the Head of Nursing and the Head of Community at the hospice to develop robust referral pathways. Liaise with Health Board and Local Authority colleagues to review and advise on pathways for referrals. Work closely with external partners when receiving referrals for a child or young person who may require Paediatric Palliative Care services.



Present all referrals to Ty Hafan Referral Panel, providing all relevant information to support decision making re acceptance for service provision as set out in the criteria for the service. Receive emergency referrals to Ty Hafan and work with relevant members of the multidisciplinary team to complete clinical assessments and advise the senior management team when out-of-panel acceptance is necessary. Undertake the initial clinical assessment prior to the childs first stay at Ty Hafan and work in association with the Family Support Practitioner to developing a comprehensive holistic plan of care. Where necessary ensure the timely emergency transfer of a child or young person from community or hospital setting, ensuring that all symptom management and clinical care plans are in place prior to the admission to the hospice for care.



Provide expert advice and support to care services staff during a child or young persons stay to ensure Paediatric Palliative Care is evidence based, delivered in accordance with care plans and of a consistently high standard. Work as an integral part of the Paediatric Palliative Care Team, ensuring attendance during ward rounds at University Hospital of Wales and Ty Hafan. Attending MDT meetings within the hospice, and the PPC meeting at UHW. Develop a process for reviewing care plans in conjunction with the community nurse, the community teams, the Hospice and with the family and external partners to ensure safe and seamless care between hospice and home.



Support care services in the implementation of care plans for children and young people, ensuring all changes are identified and communicated to all parties involved, including external agencies. Take part in quality improvement projects, championing best practice, and sustainable change. Partake in clinical audits, identifying areas requiring improvement, and working with the quality improvement group to ensure required actions are embedded in practice. This job description is flexible as it is an outline of the main duties only and will be reviewed periodically.



The post holder is also expected to undertake other duties appropriate with the band and level of responsibility of this role for which they have the necessary experience and/or training to complete.