Job Description

The post-holder will focus on mapping how people affected by rare diseases engage in clinical research both locally and internationally. They will seek and share information, communicating with a broad range of stakeholders to promote and support participation in rare disease research. They will be a primary point of contact for patients and families participating in clinical trials, developing material that supports their trial journey. In collaboration with senior colleagues, you will highlight strategic projects within a diverse portfolio, supporting a collaborative research environment that fosters a culture of trust and mutual respect between all those engaged in research. The role requires excellent interpersonal skills.
This role provides a rare opportunity to work in partnership with patients and families living with rare disease(s), academic and clinical colleagues, professional support teams, community groups, industrial collaborators. The post-holder will be based at the Centre for Public Health at Queen's University Belfast.
This role is part time, 0.5 fte 18 1/2 hours per week.
About the person:
The successful candidate must have, and your application should clearly demonstrate that you meet the following essential criteria:

• * A primary degree in a relevant subject, or substantial relevant experience in community outreach.
• * 2 years recent, relevant experience working in a multidisciplinary clinical or translational research environment
• * Experience communicating scientific and / or medical information with patients and families or clinical research participants across the lifecourse
• * Experience recruiting, retaining, and engaging with research participants
• * Experience working with a range of stakeholders to effectively engage them on complex research topics
• * Experience producing effective communications in a range of mediums
• * Experience in delivering effective information and / or engagement activities and events.

To be successful at shortlisting stage, please ensure you clearly evidence in your application how you meet the essential and, where applicable, desirable criteria listed in the Candidate Information.
This post is available for 24 months. Fixed term contract posts are available for the stated period in the first instance but in particular circumstances may be renewed or made permanent subject to availability of funding.
What we offer:
Beyond a competitive salary, the University offers an attractive benefits package including a holiday entitlement of up to 8.4 weeks a year, pension schemes and development opportunities. We support staff wellbeing with flexible working options, work-life balance initiatives and support for physical and mental health. You can find more detail on all of this and more at
Queen's University is committed to promoting equality of opportunity to all. We subscribe to Equality Charter Marks such as the Diversity Charter Mark NI and Athena Swan and have established staff networks such as iRise (Black, Asian, Minority Ethnic and International Staff Network) and PRISM (LGBTQ+) which help us progress equality.
For further information on our commitment to Equality, Diversity and Inclusion, please visit .
If you are an international applicant and don't already hold a visa that permits you to take up the role you are applying for, please use the information provided on our website to self-assess whether the University is likely to be able to support a visa application -