The Ehlers Danlos Society
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We suppor
Position: Peer to Peer (P2P) Fundraising Coordinator Location: UK or US, Remote Based Working Hours: Full Time, 9AM 5PM (GMT/EST) Salary: Up to £35,000 / $47,500 per annum (dependent on location and experience) Contract: Fixed Term (12 months with annual…
Position: Peer to Peer (P2P) Fundraising Coordinator Location: UK, Remote Based Working Hours: Full Time, 9AM 5PM (GMT) Salary: Up to £35,000 per annum (dependent on experience) Contract: Fixed Term (12 months with annual review) Revised: November 2025 Organization Overview…
Position: Community Engagement Coordinator Reports to: COO Location: UK or US, Remote Based Working Hours: Full Time, 9am 5pm (GMT/EST) Contract: Fixed Term, 12 Months (reviewed annually) Salary: £26,000 / $34,000 (dependent on location) Revised: December 2025 Organization Overview The…
Position: UX/UI Web Designer (New Website Build) Reports to: Website, IT & App Manager Location: United Kingdom, Remote Based Contract: 40 hours per week, 9 Month Fixed Term Contract Salary: £35,000 per annum Revised: November 2025 Organization Overview The Ehlers…
Position: Website Developer (WordPress, New Build) Reports to: Website, IT & App Manager Location: United Kingdom, Remote Based Contract: 40 hours per week, 12 Months Fixed Term Contract Salary: £42,000 per annum Revised: November 2025 Organization Overview The Ehlers Danlos…
Position: Website, IT & App Coordinator (NEW) Reports to: Website, IT & App Manager Location: United Kingdom, Remote Based Contract: 40 hours per week, 14 Months Fixed Term Contract Salary: £26,000 per annum Revised: November 2025 Organization Overview The Ehlers…
Position: Peer to Peer (P2P) Fundraising Coordinator Location: UK, Remote Based Working Hours: Full Time, 9AM 5PM (GMT) Salary: Up to £35,000 per annum (dependent on experience) Contract: Fixed Term (12 months with annual review) Revised: November 2025 Organization Overview…
Position: Graphic & Motion Designer (RT26) Reports to: Creative and Digital Communication Director Location: Remote (UK based) Working Hours: 40 hours per week, Fixed Term Contract until December 2026 (12 months) Salary: £29,000 per annum Revised: November 2025 Organization Overview…
Position: Graphic & Motion Designer (MOOCs) Reports to: Creative and Digital Communication Director Location: UK (Remote) Working Hours: Full Time, 40 hours per week, 9AM 5PM GMT Contract: Fixed Term (12 months with annual review) Salary: £29,000 per annum Revised:…
Position: Creative Artworker Reporting to: Creative and Digital Communication Director Location: Remote (UK based) Contract: 40 hours per week, Fixed Term Contract until December 2026 (12 months) Salary: £26,000 per annum Revised: November 2025 Organization Overview The Ehlers Danlos Society’s…
Position: Road to 2026 (RT26) Project Manager Reports to: Chief Operations Officer Location: US / UK, Remote Based Working Hours: Full Time, 9am 5pm (EST/BST) Contract: Fixed Term until December 31, 2027 Salary: £50,000 / $69,500 Revised: September 2025 Organization…
Position: CORE Network of Excellence Coordinator (CORE Network Coordinator) Reports to: Research Data & Access Director Location: USA or UK, Remote Based Working Hours: Full Time, 9 5 EST/GMT Contract: Fixed Term Contract (12 Months) Salary: $35,000 / £26,000 per…
Position: Events Director Reports to: Chief Finance Officer Location: UK, Remote Based Working Hours: Full Time, 9AM 5PM GMT/BST Salary: £53,000 £60,000 per annum (dependent on experience) Revised: October 2025 Organization Overview The Ehlers Danlos Society’s mission is dedicated to…
Position: Road to 2026 (RT26) Project Manager Reports to: Chief Operations Officer Location: US / UK, Remote Based Working Hours: Full Time, 9am 5pm (EST/BST) Contract: Fixed Term until December 31, 2027 Salary: £50,000 / $69,500 Revised: September 2025 Organization…